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1. Has your headache condition been diagnosed by a healthcare professional?   Yes 78 63% No 45 37% Total 123 100%

2. If yes, what type of headache diagnosis did you receive?   1   Migraine 35 36% 2   Tension-type headache 6 6% 3   Chronic daily headache 15 15% 4   Cluster headache 12 12% 5   Sinus headache 1 1% 6   Allergy headache 2 2% 7   Not sure 12 12% Other, Please Specify 15 15% Total 98 100%

3. If no, why haven’t you visited a healthcare professional? Please select all that apply:   1   Personal pride 2 5% 2   I should be able to “tough-it-out” 10 24% 3   I think of it as a “woman’s disease” 2 5% 4   I don’t like visiting the doctor for any reason 7 17% 5   I don’t view it as a serious enough condition to warrant a doctor visit 10 24% 6   No pressure from my significant other 0 0% 7   Over-the-counter medications make the condition manageable 13 32% 8   Others in my family lived with it and I can too 0 0% Other, please specify 16 39%

4. Where do you receive your health information? Please select all that apply:   1   Healthcare Provider 96 79% 2   Internet 82 67% 3   Magazines 30 25% 4   Newspapers 8 7% 5   TV 20 16% 6   Radio 6 5% 7   Significant other 20 16% 8   Family members/Friends 34 28% 9   Employer/Co-workers 13 11% Other, please specify 8 7%

5. Are you open in discussing your diagnosis with others?   Yes 100 83% No 21 17% Total 121 100%

6. If no, why?   1   I would be embarrassed 2 8% 2   I don’t like sharing personal information 15 60% 3   I don’t want to be viewed as “weak” 3 12% 4   I don’t think others would understand 2 8% Other, please specify 3 12% Total 25 100%

7. When told of your headache diagnosis did you believe your healthcare professional?   Yes 79 85% No 14 15% Total 93 100%

8. If no, why?   1   I don’t believe it’s an actual medical condition 2 12% 2   I think of it as only a woman’s problem 0 0% 3   I think it’s something more serious and don’t want to face the possibility 3 18% 4   I don’t want to deal with future doctor visits that may result from having a medical condition 2 12% 5   I don’t want to take medication 2 12% Other, please specify 8 47% Total 17 100%

9. If you received a prescription for headache did you fill it?   Yes 81 84% No 15 16% Total 96 100%

10. If no, why?   1   Cost 1 8% 2   It is not covered by insurance 2 15% 3   I don’t think it will work 0 0% 4   I don’t think I need it 1 8% 5   Over-the-counter products work just as well 0 0% 6   I don’t like taking medication 2 15% 7   Concern about side effects 3 23% Other, Please Specify 4 31% Total 13 100%

11. Do you take medication as prescribed?   Yes 81 80% No 20 20% Total 101 100%

12. If no, why?   1   I tried it and it hasn’t helped 2 10% 2   I don’t like taking medication for any reason 2 10% 3   I forget to take it 1 5% 4   I am concerned about side-effects 5 25% 5   I don’t think it will help 2 10% Other, Please Specify 8 40% Total 20 100%

13. Is there a history of headaches in your family?   Yes 64 55% No 52 45% Total 116 100%

14. If yes, who has the history of headaches in your family?   1   Mother 34 52% 2   Father 15 23% 3   Sister 6 9% 4   Brother 2 3% 5   Aunt/Uncle on mother’s side 1 2% 6   Aunt/Uncle on father’s side 2 3% 7   Grandparent on mother’s side 3 5% 8   Grandparent on father’s side 2 3% Total 65 100%

15. How long have you experienced headaches?   1   1-5 years 42 35% 2   6-10 years 21 18% 3   11-15 years 14 12% 4   16-20 years 7 6% 5   More than 20 years 35 29% Total 119 100%

16. Tell us about yourself by checking the appropriate boxes, select all that apply:   1   Male 110 91% 2   Female 7 6% 3   Under 20 5 4% 4   Age 21 - 35 38 31% 5   Age 36 - 50 34 28% 6   Over 50 36 30%

17. At what age did you first experience headache?   1   Less than 10 years old 25 21% 2   11-15 years old 18 15% 3   16-20 years old 18 15% 4   21-30 years old 20 17% 5   31-40 years old 14 12% 6   After age 40 25 21% Total 120 100%

18. Are you a member of the National Headache Foundation?   Yes 10 8% No 111 92% Total 121 100%

19. How did you learn about National Headache Foundation?   1   Healthcare Provider 8 7% 2   Family Member/Friend 5 4% 3   Employer/Co-workers 2 2% 4   Internet 94 82% 5   Newspaper 0 0% 6   Magazine 2 2% 7   TV 0 0% 8   Radio 0 0% Other, Please Specify 4 3% Total 115 100%