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Are Your Headaches Causing You to Miss Out on Life?

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  1. Do you suffer from headaches?  
Yes
 
186 100%
No
       
0 0%
Total 186 100%
  2. What type of headache do you experience most frequently?  
Migraine
 
116 60%
Tension-type headache
 
26 13%
Chronic daily headache
 
68 35%
Cluster headache
 
12 6%
Sinus headache
 
11 6%
Allergy headache
 
3 2%
Not sure
 
20 10%
Other, please specify
 
13 7%
  3. When suffering from a headache, where do you most often seek support?  
Spouse or partner
 
84 44%
Family member
 
33 17%
Friend
 
7 4%
Employer or co-worker
 
1 1%
Healthcare provider
 
26 14%
I don’t confide in others about my headache pain
 
40 21%
Total 191 100%
  4. Have your headaches ever caused you to miss a day of work?  
Yes
 
167 87%
No
 
25 13%
Total 192 100%
  5. If yes, did you tell your employer about your headache?  
Yes, I did and my employer accepted my headache as a reason to miss work
 
123 67%
Yes, I did, but next time I would not be truthful about the reason
 
16 9%
No, I don’t feel my employer would accept my headache as a reason to miss work
 
19 10%
No, I don’t feel my employer needs to know my personal health information
 
10 5%
I have never missed work due to a headache
 
15 8%
Total 183 100%
  6. If yes, have you ever experienced resentment from your colleagues? (Choose all that apply)  
Yes, my colleagues seem to resent the time I am away from work because of my headaches
 
42 25%
Yes, my colleagues dismiss headache as a reason to miss work
 
36 21%
No, my colleagues accept my headache as a reason to miss work
 
60 35%
No, I do not share my personal health information with my colleagues
 
26 15%
I have never missed work due to a headache
 
16 9%
  7. How many days per month do you miss work because of a headache?  
1 or fewer
 
86 49%
2-5
 
50 28%
5 or more
 
40 23%
Total 176 100%
  8. If missing work due to a headache, what is another reason you give for being absent, if you choose not to state that you have a headache? Please specify.  
57 Responses
  9. Have your headaches ever caused you to skip a family or social event?  
Yes
 
182 94%
No
 
11 6%
Total 193 100%
  10. How many days in the last year did you miss family or social events because of a headache?  
1 or fewer
 
23 12%
2-5
 
81 43%
5 or more
 
85 45%
Total 189 100%
  11. If yes, did you tell your family or friends about your headache?  
Yes, I did and my family and/or friends accepted my headache
 
159 83%
Yes, I did, but next time I would not be truthful about the reason
 
10 5%
No, I don’t feel my family and/or friends would accept my headache as a reason to miss an event
 
11 6%
No, I don’t feel my family and/or friends need to know my personal health information
 
8 4%
I have never skipped a family or social event due to a headache
 
4 2%
Total 192 100%
  12. If yes, have you ever experienced resentment from your family or friends?  
Yes, my family and/or friends seem to resent me skipping events because of my headaches
 
38 20%
Yes, my family and/or friends dismiss headache as a reason to miss events
 
26 14%
No, my family and/or friends accept the my headaches as a reason to miss events
 
113 60%
No, I do not share my personal health information with my family and/or friends
 
7 4%
I have never missed an event due to a headache
 
5 3%
Total 189 100%
  13. Have you ever felt embarrassed to tell your healthcare provider about your headaches?  
Yes
 
50 26%
No
 
137 71%
I’ve never seen a healthcare provider about my headaches
 
7 4%
Total 194 100%
  14. If yes, why did you feel you couldn’t tell your healthcare provider about your headaches?  
Headache may not be viewed as a real disease
 
14 12%
Headache isn’t something my doctor can treat
 
3 3%
My doctor wouldn’t believe me
 
4 3%
I should be able to “tough it out”
 
15 13%
I have told my doctor about my headache
 
83 70%
Total 119 100%
  15. Do you talk to your spouse or partner about your headaches  
Yes
 
170 90%
No
 
18 10%
Total 188 100%
  16. If no, why?  
My spouse/partner wouldn’t believe me
 
1 1%
My spouse/partner doesn’t experience headaches and s/he wouldn’t understand my pain
 
10 12%
My spouse/partner doesn’t believe headache is a real disease
 
5 6%
I talk to my spouse/partner about my headaches
 
68 81%
Total 84 100%
  17. Have you ever not been truthful about missing work or another function because of headaches?  
Yes
 
82 42%
No
 
112 58%
Total 194 100%
  18. If yes, why did you not tell the truth? (Choose all that apply)  
Headaches are not a real disease
 
9 10%
When I’ve told the truth in the past, people dismiss headache as a reason to miss an event
 
40 43%
I am embarrassed to miss events because of my headaches
 
32 35%
I should be able to “tough it out”
 
33 36%
I don’t feel like anyone else needs to know
 
14 15%
  19. How long have you experienced headaches?  
1-5 years
 
55 28%
6-10 years
 
35 18%
11-15 years
 
28 14%
16-20 years
 
23 12%
More than 20 years
 
53 27%
Total 194 100%
  20. Tell us about yourself by checking the appropriate boxes. Please select all that apply.  
Male
 
23 12%
Female
 
161 83%
Under 20
 
13 7%
Age 21 – 35
 
59 30%
Age 36 – 50
 
81 42%
Over 50
 
22 11%
  21. At what age did you first experience headache?  
Less than 10 years old
 
36 19%
11-15 years old
 
53 27%
16-20 years old
 
30 16%
21-30 years old
 
34 18%
31-40 years old
 
24 12%
After age 40
 
16 8%
Total 193 100%
  22. Are you a member of the National Headache Foundation?  
Yes
 
20 10%
No
 
174 90%
Total 194 100%
  23. How did you learn about the National Headache Foundation?  
Physician
 
16 8%
Friend
 
5 3%
Employer/Manager
 
3 2%
Internet
 
146 76%
Newspaper
 
3 2%
Magazine
 
4 2%
TV
 
2 1%
Radio
 
2 1%
Other, please specify
 
11 6%
Total 192 100%
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