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1. Do you suffer from headaches?   Yes 135 96% No 6 4% Total 141 100%

2. Are you sexually active?   Yes 135 96% No 6 4% Total 141 100%

3. Has sex ever triggered a headache?   Yes 64 46% No 76 54% Total 140 100%

4. If yes, how many times have you experienced a headache during sexual activity?   1   One to three times 25 21% 2   Four to six times 25 21% 3   Seven to nine times 4 3% 4   Ten or more times 19 16% 5   None 46 39% Total 119 100%

5. How does sexual activity impact the frequency of your headaches?   1   Increased sexual activity reduces the frequency/severity of my headaches 27 20% 2   Increased sexual activity increases the frequency/severity of my headaches 19 14% 3   Sexual activity induces headaches 28 20% 4   No impact at all 51 37% Other, please specify 12 9% Total 137 100%

6. How would you describe the onset of the headaches during sexual activity?   1   A dull ache in the head and neck that intensifies as sexual excitement increases. 20 21% 2   Sudden, severe headache pain occurring at orgasm. 22 23% 3   Headache develops after sexual activity and is worse when standing up than lying down. 32 33% Other, please specify 23 24% Total 97 100%

7. How long do the headaches associated with sexual activity typically last?   1   They stop when sexual activity is ceased 10 11% 2   1 - 15 minutes 12 14% 3   15 - 30 minutes 15 17% 4   30 - 60 minutes 13 15% 5   More than an hour 37 43% Total 87 100%

8. How have your sex-associated headaches impacted sexual activity? (Please select all that apply)   1   No longer sexually active 3 3% 2   Have decreased sexual activity somewhat 29 26% 3   Have decreased sexual activity significantly 18 16% 4   Have increased sexual activity 7 6% 5   No effect at all 52 46% Other, please specify 4 4%

9. Have you ever spoken with your health care provider about headaches associated with sexual activity?   Yes 17 12% No 120 88% Total 137 100%

10. Have you ever avoided sex because of a headache?   Yes 96 70% No 42 30% Total 138 100%

11. If yes, has the avoidance caused a strain on your relationship?   Yes 45 37% No 78 63% Total 123 100%

12. Did you tell your partner that your headache was why you did not have sex?   Yes 91 71% No 38 29% Total 129 100%

13. Is your partner sympathetic when you defer sex because of a headache?   Yes 88 69% No 40 31% Total 128 100%

14. Have you ever not been truthful about skipping sex because of a headache?   Yes 49 37% No 82 63% Total 131 100%

15. Would you like to hear from the NHF about tips to better manage your headaches in 2008?   Yes 89 66% No 46 34% Total 135 100%

16. Are there any specific topics related to headache management for which you would like tips or information from the NHF? Please specify.   22 Responses

17. How long have you experienced headaches?   1   1-5 years 47 35% 2   6-10 years 25 19% 3   11-15 years 16 12% 4   16-20 years 12 9% 5   More than 20 years 34 25% Total 134 100%

18. Tell us about yourself by checking the appropriate boxes. Please select all that apply.   1   Male 39 28% 2   Female 85 62% 3   Under 20 5 4% 4   Age 21 – 35 70 51% 5   Age 36 – 50 35 26% 6   Over 50 12 9%

19. At what age did you first experience headache?   1   Less than 10 years old 24 18% 2   11-15 years old 37 27% 3   16-20 years old 31 23% 4   21-30 years old 25 18% 5   31-40 years old 12 9% 6   After age 40 8 6% Total 137 100%

20. Are you a member of the National Headache Foundation?   Yes 12 9% No 124 91% Total 136 100%

21. How did you learn about the National Headache Foundation?   1   Physician 15 11% 2   Friend 5 4% 3   Employer/Manager 4 3% 4   Internet 83 60% 5   Newspaper 1 1% 6   Magazine 2 1% 7   TV 13 9% 8   Radio 7 5% Other, please specify 10 7%